Welcome to The National Congenital Heart Disease Audit Website.

Update: 3/6/2015

The data on this website has been updated with validated data for the 2013-2014 period. 1 year follow up information is not yet available for this period. Unvalidated data for 2014-2015 should be available and published on this website by August 2015.

Analysis of 2011/14 NCHDA data is now available

Today, the NCHDA audit publishes findings from the audit period April 1st 2011 to March 31st 2014. The analysis is based on 22,719 congenital heart disease surgery and interventional procedures submitted by 34 centres, including all 14 specialist children centres.

Key findings:

· No hospital had excess 30 day mortality following paediatric cardiovascular surgery within the reporting period, as assessed by using the PRAiS risk adjustment model.

· Analysis of all hospitals showed an upward trend in 30 day postprocedural survival in the most recent 18 months.

· For the 56 Specific Procedures used as a basis of inter-unit comparison, there was one alert-level outlier for paediatric cardiac surgery and none for paediatric intervention, adult (ACHD) cardiac surgery and adult (ACHD) intervention. A report from Evelina London Children’s Hospital concerning this single procedure is available here as well as the NICOR with Professional Societies response to this report.

· Antenatal diagnosis of congenital heart disease has gradually improved over the past 8 years. In 2013/14, approaching 45% of infants who required a procedure to treat a congenital heart malformation in the first year of life were diagnosed through antenatal screening, compared to less than a quarter of cases in 2003/4.

A more detailed account of these findings are provided in the NCHDA 2011-14 report available here.

Update: 15/04/2014

The Health and Social Care Information Centre and Office for National Statistics acknowledge that the statutory process for the registration of death across England and Wales does not in all cases guarantee completeness at any specified date. In the case of a death referred to the coroner, in most cases, it cannot be registered until the coroner's enquiries have been completed and a death certificate issued and provided to the Registrar of Births and Deaths. For research studies looking at cause of death this may mean a delay in the reporting process of these deaths, which could affect some analysis. While every effort is made to discuss this issue with customers at the time of their request both the HSCIC and ONS wish to make this clear to all users of death registration data provided through the two organisations. Please see the ONS website for further details.

About

Please be aware of the Terms and Conditions with respect to reproducing items from this website.

The National Congenital Heart Disease Audit (NCHDA) is managed by the National Institute for Cardiovascular Outcomes Research (NICOR), is the largest and most comprehensive national audit of its kind in the world and is now in its 14th year. The audit collects data from all centres undertaking congenital cardiac surgery and interventional procedures in the UK.

Among the information provided on the portal are profiles of every congenital heart disease centre in the UK, including the number and range of procedures they carry out and survival rates for the most common types of treatment.

Patients, parents and carers are encouraged to regard the facts and figures in the site as a useful source of information. This knowledge can then be used together with the information they receive from their family doctor and heart specialist in making any decisions on treatment options.

The audit is commissioned by the Healthcare Quality Improvement Partnership as part of the National Clinical Audit Programme* and clinically led by the British Congenital Cardiac Association and The Society for Cardiothoracic Surgery in Great Britain and Ireland.

We welcome your feedback about how useful you have found the information on this website.

How to use this information

For more information about how to interpret the information and more information about the site, go to information for patients



Associate Logos Healthcare Commisson Society of Cardiothoracic Surgery British Congenital Cardiac Association British Cardiovasculer Society