Welcome to The Congenital Heart Disease Website.
The Health and Social Care Information Centre and Office for National Statistics acknowledge that the statutory process for the registration of death across England and Wales does not in all cases guarantee completeness at any specified date. In the case of a death referred to the coroner, in most cases, it cannot be registered until the coroner's enquiries have been completed and a death certificate issued and provided to the Registrar of Births and Deaths. For research studies looking at cause of death this may mean a delay in the reporting process of these deaths, which could affect some analysis. While every effort is made to discuss this issue with customers at the time of their request both the HSCIC and ONS wish to make this clear to all users of death registration data provided through the two organisations. Please see the ONS website for further details.
The data on this website has been updated with unvalidated data for the 2012-2013 period. 1 year follow up information is not yet available for this period.
Please be aware of the Terms and Conditions with respect to reproducing items from this website.
The site has been created by UCL NICOR (the National Institute for Cardiovascular Outcomes Research). It aims to give older patients and the parents and carers of children with congenital heart disease information to help them make important decisions about treatment.
Among the information it provides are profiles of every congenital heart disease centre in the UK, including the number and range of procedures they carry out and survival rates for the most common types of treatment.
Patients, parents and carers are encouraged to regard the facts and figures in the site as a useful source of information. This knowledge can then be used together with the information they receive from their family doctor and heart specialist in making any decisions on treatment options.
The Congenital Heart Disease portal has been developed by UCL NICOR (the National Institute for Cardiovascular Outcomes Research), using information collected by its Central Cardiac Audit Database (CCAD). This has been done in collaboration with the Society for Cardiothoracic Surgery and The British Congenital Cardiac Association (BCCA) formerly the British Paediatric Cardiac Association. The website has been funded by the Healthcare Commission
We welcome your feedback about how useful you have found the information on this website.
How to use this information
For more information about how to interpret the information and more information about the site, go to information for patients